I'M NEW 2 THIS GROUP + DIDN'T KNOW WHERE 2 START AS MY YOUNGEST SISTER WAS MIS-DIAGNOSED , HOSPITALIZED , AND HEAVILY MEDICATED B4 SHE GOT AN ACCURATE DIAGNOSES + TREATMENT AT THE SILVERCREST CHILD DEVELOPMENT , WHICH THE CURRENT GOV'NOR GOT CLOSED DOWN UNFORTUNATELY .
OUR PARENTS WERE IN THEIR 4O'S WHEN MY YOUNGEST SISTER WAS BORN . WE HAVE ALMOST EVERYTHING ON FILM STARTING WITH HER SONARGRAMS ?
ONE THING I KNOW ABOUT FAMILYS WITH ADHD IS EVERYONE IS USUALLY EXHAUSTED . MY SIS HAS GROWN OUT OF A LOT OF HER SYMPTOMS , SHE HAS BEEN ON SO MANY MEDS SINCE SHE WAS 3 MAYBE . SEEING A PSYCHIATRIST + CHILD PSYCHOLOGIST WHEN SHE WAS 4 I THINK ?
SOME THINK OF AUTISM AS A WITHDRAWAL BUT SIS IS VERY OUTGOING . SHE WAS ALWAYS ''TOO" SOCIABLE WITH EVERYONE , OTHER KIDS + ADULTS . BUT IN SOME WAY NOT ABLE TO CONNECT IN A SOCIAL WAY , NOT SURE HOW 2 EXPLAIN THIS . BUT A VERY STRONG PERSONALITY ALSO VERY INTELLIGENT . ALSO gr8 ON COMPUTERS . BUT SHE CANNOT REALLY PASS A CLASS IN SCHOOL . AFTER SILVERCREST , SHE WAS MAINSTREAMED N2 LOCAL , RURAL , SMALL SCHOOL . I WENT 2 PRIVATE SCHOOL BUT THEY WOULD NOT ACCEPT HER .
FOR NOW SHE IS OFF ALL MEDS , SHE WAS VERY SLOWLY WITHDRAWN FROM STRATTERA AND LEXAPRO . THEY TOLD US THE ADHD KIDS TRY SUICIDE MORE OFTEN AS THEY 'FEEL' DIFFERNT . OR GET DEPRESSED DUE TO NOT BEING ABLE 2 FIT IN OR GET ROUTINE STUFF DONE .
GETTING HER OFF THE DRUGS WAS HELL . I REMEMBER IT , SHE WENT THROUGH WITHDRAWALS TRUELY ALMOST A YEAR , ABOUT AS LONG AS SHE HAD BEEN ON THE STRATTERA + LEXAPRO OR CELEXIA - - - SOME ANTIDEPRESSANT . SHE WAS SKINNY + SUGAR TASTED LIKE SALT . SHE WAS ALWAYS COLD + OUR MOM WAS GOING THROUGH THE PAUSE SO SHE KEEPT/KEEPS THE HOUSE COLD + SIS WAS ALWAYS FREEZING . (ME 2 BUT I WEAR FLANNEL AND SOCKS AND A ROBE OVER THAT ) + USE A SPACE HEATER .
THEY SAY IT RUNS IN FAMILYS + MAYBE TRIGGERED BY VACCINES ., AND ALSO OLDER FATHER'S TEND TO FACTOR IN .
WELL I HAVE GOT A LOT 2 SAY ABOUT THIS SUBJECT . I HEAR MOST FAMILYS , THE PARENTS GET DIVORCED AS IT IS JUST ALL SO VERY DIFFICULT BUT MINE R MARRIED 3O YEARS NOW . BUT MY DAD NOW HAS DIABETES .
MAYBE SOMEONE SHOULD TELL WOMEN TO THINK ABOUT HAVING THAT BABY IN THEIR 4O'S . MY MOM WAS HEALTHY BUT THE PREGNANCY TOOK A TOLL ON HER , OB LET HER GO TOO LONG , FINALLY INDUCED THE BIRTH . THEY PUT THE EPIDURAL MED IN THE WRONG PLACE IN HER SPINAL COLUM .
SO I'LL BE BACK HERE . I WAS SURPRISED THERE'S SO MANY MORE MEMBERS THAN COMMENTS . I CAN UNDERSTAND THAT IT IS VERY COMPLEX + IT CAN BE DIFFICULT NOT JUST 4 THE PARENTS BUT ALSO THE SIBLINGS .
ALSO SIS IS MORE UNUSUAL CAUSE BOYS GENERALLY GET THIS COMBINATION , NOT A HIGH PERCENTAGE OF GRRLS .
How do YOU feel about the immunization/austism connection? Did the shots shut down your child? Do you feel that there is no connection? Do you feel that there is one massive cover up going on? What do you think?
Hello! I'm new to this discussion group. I've joined because not only do I have a son with Autism...but I've also written and published a cookbook. A year and a half ago my son was diagnosed with Autism. We instantly heard about the GF/CF diet. We dove head first into the diet. Our world has made a complete 180. After my son was on the diet for 2 weeks...he said "mommy" for the first time. This is a child who did not speak. The longer he was on the diet...the more his speech improved. Not only did his speech get better...so did he behavior. He finally stopped banging his head and screaming. It was like he was a new child! I'm forever grateful for the diet and I wanted to share with the world the wonders it can do to children on the Spectrum! My whole goal in writing the cookbook was to help other families with the diet. It can seem difficult at first...but boy it is worth everything!
I'm always open to questions if any of you are thinking about doing the diet for your child. I would love any suggestions too if any of you have been doing the diet too! Margie
Our son William who will be 3 on July 31st was diagnosed with Autism on June 11th. So we are just beginning the long road to recovery. We fall in the category of before he had his immunizations he was eating regular food, he was talking, etc. Then he began to go backwards. He lost his speech, he will only eat 4 things (cereal bars, any type of cracker, banana, and white powdered donuts) and he drinks pediasure shakes to helps fill in what he misses in his diet. I know there is a lot of discussion on whether or not immunizations help trigger Autism, my family agrees that it does. When he due for his next round I do not know that we will get them.
He has 3 older sisters who are doing a wonderful job helping with him. They are very loving and understanding that he does not understand things like they do. We are fortunate that the local school district has an Autism program, but because he was diagnosed in the summer I cannot get him in until late August. I fell like we are wasting time, so we work on anything we can ourselves. We are getting ready to go gluten free and diary free and add some omega 5 to his diet. This could be a challenge, there are sooooo many things that have glutens in them.
The only advise I can give at this point would be to go to the TACA website ( www.tacanow.org ) It stands for taking about curing autism and I have found more information there then anywhere else including the doctors. They pretty much said here is your dianosis, here is a few pamphlets, have a nice day. To anyone who may have suggestions for us, please feel free to share.
HI everyone. I was searching the ebay site because my book (i'm an author) was posted for sale. I came accross this board and had to stop in and say HI. My name is Danielle. I have three boys, one (my middle son) has sever autism and cerebral palsy. He's 11 now and is getting to be a pistle. lol. Anyway. It is nice to meet all of you and i hope to hear from you soon.
My four year old son Jacob and my 2 1/2 year old Aidan were diagnosed in November, they are taking a low dosage anti seizure medicine but it isn't helping. They can't start therapy until March 2009 that is how long the wait is here. I have several videos on youtube (am I allowed to say that?) I would love to get to know everyone. Also I have a 13 year old that I believe was misdiagnosed when he was 2 1/2, they said he was ADHD ODD and I think he is mildly Autistic like myself and outgrew most of his. I wish that were the same for my Jacob and Aidan, they are not mildly Autistic. Well I hope to jump right in.~Shay
I am interested in this topic, although I do not have a child with autism I would like to help the cause :) does anyone have a banner that they want me to place on my web boutique?? (my "real one") www.bellapink.net *i would be happy to,send me info to my ebay username. I do alot of networking with other WAHM'S..good info in here
my son also has autism.. he is one of my 4 children and he is the only one with any special needs. There are days that he is just the sweetest thing, other days he is LIKE a raging monster. Is there any definates on what causes autism???? I heard it was something in the MMR vacination, so with my 8 month old he is getting one less vacine come this next visit. I have put my son into a pre-school to get some OT- PT and Speech, so that when it comes time for him to start school (kindergarten) he will be as normal as he can be.....
I too have a child with Asperger's. He is the middle child at age 10. His older sister is 12 and his younger brother is almost 3 (July). I have found it hard to deal with his symptoms sometimes because he doesn't live with me (that's a story for another neighborhood) and he doesn't want to come see me very often. I leave the visitation in his hands, when he wants to see me he calls and I pick him up. I was just really wondering if information retention is a typical symptom of Asperger's or would that fall under another category. He has been taught, on several occassions, how to tie his shoes and dress himself, but has problems remembering to button or zip up and cannot tie his shoes himself still. I want an expert opinion (parental) on this subject and from what I've read in this forum so far, I'm in the right place. I would also like to know of places that sell shirts and bumper stickers and other items pertaining to Asperger's (I don't want to buy Autism stuff because I feel that would be like claiming my child has cancer because I found a freckle). I hope the questions I've asked make sense to someone and hope any comments I've made don't offend. Anyway, thanx for hearing me out.
HI My son who is four was just diagnosed with autism. I have never joined anything or blogged but thought maybe everyone might have some suggestions. He is a great kid who wants to connect with other kids but seems unable to do so. Also I was told that most kids with autism have cognitive delays and up to 80% are MI. I don't think my son is MI but I know there are some cognitive delays. Anyone out there in the same situation.
Hi, I have been reading all of the posts here and I did not see anything on Asperger's. I would really enjoy being a member of this group, but I do not want to step in where I do not belong.
Now that Autism is FINALLY getting the media attention it deserves, we need to turn our attention to public education.
Our nation's children have rapidly changing needs - disability is an issue now more than ever. I believe we should teach the next generation inclusively, so that at least in schools, disability can be a non-issue. And eventually we can just call this - education.
I know some parents are FOR inclusive ed and others are vehemently AGAINST it. But I've seen a successful program in an URBAN PUBLIC school and I truly believe that it can be done, done well, and done in a manner that helps children with and without autism grow academically and socially.
I wrote a lot about this program but I realized that unless people saw it for themselves, they might not believe their children with autism could really learn and grow in an environment that wasnt separate or only with adults/specialists. But in this program, the children have aids with them all day, and develop real friendships with the other children. They often learn from watching the other children, and learn more quickly from their peers than from their various teachers. At this school it just works.
To learn more about the film, or this public school inclusive education please visit palomitapictures.com or myspace.com/elementaryeddoc
I really really believe the future of education is to teach inclusively, our children's needs are becoming more and more diverse. There's a short trailer on you tube, you can hear what the parents and teachers think - YOUTUBE TRAILER
What are your thoughts on inclusive education? Has anyone ever seen a program that really works and could serve as a model for other communities? Is it hard to imagine this program really working in an underfunded public school if you never personally seen a school make it work?
Hello - We are a busy family who has had outstanding results in having a GFCF diet. Is there anyone else that has tried this? Any thoughts or comments would be appreciated. Thank you.
Hi -- I just joined -- wanted to tell everyone hello. I have a beautiful 4 year old with severe "classic" autism. I also have an 11 year old with moderate Asperger's. I also have a 4year old (yes, a twin) that is so far gifted -- he's reading on a 2nd grade level. Life with children on the spectrum is an adventure.